Personal Stories

Individuals with Alzheimer’s, their families, caregivers, friends, and their communities are all burdened by this devastating disease. It robs people of their memory, personality, and ultimately, their life. Outdated regulatory and policy barriers are unfortunately exacerbating the hardships patients, caregivers, and families face. Hear their stories:

Bill Gates

“Father’s Day without my dad never gets easier”

Tami Garcia

“As patient advocates, we are concerned about a recent CMS decision limiting access to a new, FDA approved, Alzheimer's drug”

Derwin Anderson

"Together, we can fight for dignity, hope, and a brighter future for every family touched by Alzheimer's Disease and other dementias"

Louise Jacobsen Fisher

“…the cost of care…is estimated at a staggering $400,000 for the average patient…

Grace ishida

“Alzheimer's robs people of their mental abilities, their personalities, and ultimately their lives”

Marta Malone

"Science is moving forward, and lawmakers must ensure that Medicare catches up"

Jim Taylor

“There came a day when my wife, Geri, didn't recognize her own face in the mirror”

Nataniel Brown

“In order for treatments to be effective, patients have to be able to access it”

Jane Nelson

"The support for updating Medicare's Alzheimer's care policies is overwhelming"

Doreen Monks

“The cruelty of Alzheimer’s disease is that it kills its victims twice: It robs patients of who they are, and then it takes their lives"

Lorren Sandt

“Decades of research have finally paid off with this new drug but CMS is blocking access for Medicare beneficiaries"